My Light Sensitive Son – A Poem

My son was 12 and super sensitive to the light. The only thing I could do was to try to identify who he is and what he needs at different times of the year.

He would like you to know that he is now nearly 14 and this year discovered glasses to help his short sight and also dark tints to wear in the brighter light. His life has been transformed. He can engage with life and the world in a much deeper way, However his visual processing issues still mean that he finds activities challenging and tiring that others find easy and not tiring at all.

My Son

In January he comes to find me,
In February we like to write.
In March he likes to play outside
But by April he is nowhere in sight.
In May he shuts his curtains
And programmes his way through the day.
In June he hardly speaks,
Only Unity, C Sharp all day.
In July he likes late night picnics
And will go to the beach or the park.
In August he goes on badger hunts,
Wearing his torch after dark
In September the garden is spooky,
In October the leaves are too red,
In November he asks to do music
Now the rhythms make sense in his head.
In December he does animation
Because he can now think straight.
He creates the most heart warming stories;
It was definitely worth the wait!

We are not Islands When it Comes to Our Well-being – What is Influencing You Today?

I have been thinking about all the things that influence our state of well-being outside of our brains, and our own brains are challenging enough for some of us! Or – is there no such thing as anything outside of our brain because our well-being is all intertwined with our relationship with the world?

With or without knowing it, we are all constantly influenced by:-

  • Our visual perception
  • Our perception of sound
  • Our perception of smell
  • Our perception of taste and texture
  • Our perception of touch
  • Our perception of balance
  • Our proprioception
  • Our perception of colour
  • Our perception of light
  • Our perception of temperature
  • Seasonal Changes
  • The Weather
  • The Moon
  • Our Health
  • Our Cycles and Rhythms
  • Our feelings and thoughts
  • The quality of our family relationships
  • The emotional climate around us
  • Atmospheres of places and buildings

We can’t really separate out these stimuli and and the affects of them on our well-being. I got up today and saw there was sheep on the hill ouside our bedroom window (that weren’t there last time I looked) and felt comforted. I went to the other side of the house and the clouds were as black as black. I felt slightly less comfort but a sort of excitement as the light was bright on the garden, but the sky was dark. Then someone used the tap downstairs and I felt less comfort again, and rattled, and closed the door of the room I was in. Then my husband came in and told me how dark the sky was (!) and I automatically turned to look at it, without thinking first. The colour hurt my eyes. Now I have the sound of hail on my window which sometimes I love, but today I am not so sure about.

And so my day will continue . . a mixture of influences from my own thoughts and ideas, to the weather, light, colour, my son’s feelings . . . I am intrinsically connected to these things. There is no point in seeing them as rude interruptions or nuisances. They shape who I am and what I am going to do. I need to welcome them with open arms and let them move and inspire me.

What I do know today is that this exciting weather is giving me the energy and inspiration to write this post.

We are not islands when it comes to our wellbeing? What is influencing you today?